Measuring Spiritual Well-Being in Brazilian Adolescents with Chronic Illness Using the FACIT-Sp-12: Age Adaptation of the Self-Report Version, Development of the Parental-Report Version, and Validation
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Measuring Spiritual Well-Being in Brazilian Adolescents with Chronic Illness Using the FACIT-Sp-12: Age Adaptation of the Self-Report Version, Development of the Parental-Report Version, and Validation. / de Alvarenga, Willyane Andrade; Nascimento, Lucila Castanheira; Dos Santos, Claudia Benedita; Leite, Ana Carolina Andrade Biaggi; Mühlan, Holger; Schmidt, Silke; Bullinger, Monika; de Carvalho, Emília Campos; Bredle, Jason; Arnold, Benjamin; de Castro Coelho, Robson; Vieira, Margarida.
in: J RELIG HEALTH, Jahrgang 58, Nr. 6, 12.2019, S. 2219-2240.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung
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TY - JOUR
T1 - Measuring Spiritual Well-Being in Brazilian Adolescents with Chronic Illness Using the FACIT-Sp-12: Age Adaptation of the Self-Report Version, Development of the Parental-Report Version, and Validation
AU - de Alvarenga, Willyane Andrade
AU - Nascimento, Lucila Castanheira
AU - Dos Santos, Claudia Benedita
AU - Leite, Ana Carolina Andrade Biaggi
AU - Mühlan, Holger
AU - Schmidt, Silke
AU - Bullinger, Monika
AU - de Carvalho, Emília Campos
AU - Bredle, Jason
AU - Arnold, Benjamin
AU - de Castro Coelho, Robson
AU - Vieira, Margarida
PY - 2019/12
Y1 - 2019/12
N2 - Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait-multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil.
AB - Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait-multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil.
U2 - 10.1007/s10943-019-00901-y
DO - 10.1007/s10943-019-00901-y
M3 - SCORING: Journal article
C2 - 31446605
VL - 58
SP - 2219
EP - 2240
JO - J RELIG HEALTH
JF - J RELIG HEALTH
SN - 0022-4197
IS - 6
ER -