How does a chronic wound change a patient's social life? A European survey on social support and social participation
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How does a chronic wound change a patient's social life? A European survey on social support and social participation. / Janke, Toni Maria; Kozon, Vlastimil; Barysch, Marjam; Valiukeviciene, Skaidra; Rackauskaite, Laura; Reich, Adam; Stępień, Katarzyna; Jankechova, Monika; van Montfrans, Catherine; Amesz, Stella; Conde Montero, Elena; Augustin, Matthias; Blome, Christine.
in: INT WOUND J, Jahrgang 20, Nr. 10, 12.2023, S. 4138-4150.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung
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TY - JOUR
T1 - How does a chronic wound change a patient's social life? A European survey on social support and social participation
AU - Janke, Toni Maria
AU - Kozon, Vlastimil
AU - Barysch, Marjam
AU - Valiukeviciene, Skaidra
AU - Rackauskaite, Laura
AU - Reich, Adam
AU - Stępień, Katarzyna
AU - Jankechova, Monika
AU - van Montfrans, Catherine
AU - Amesz, Stella
AU - Conde Montero, Elena
AU - Augustin, Matthias
AU - Blome, Christine
N1 - © 2023 The Authors. International Wound Journal published by Medicalhelplines.com Inc and John Wiley & Sons Ltd.
PY - 2023/12
Y1 - 2023/12
N2 - Chronic wounds can severely limit patient's social life. This cross-sectional study investigated quantitatively social support of patients with chronic wounds, its association with health-related quality of life as well as qualitatively changes in social participation of these patients. Overall, 263 patients from seven countries participated. The most frequent wound class was leg ulcer (49.2%). Results revealed generally high levels of social support (mean global score: 5.5) as measured with the Multidimensional Scale of Perceived Social Support. However, individuals differed considerably (range 1.0-7.0). All dimensions of social support differed by patients' family and living situations (p < 0.001 to p = 0.040) and were positively correlated with generic health-related quality of life (r = 0.136-0.172). Having children, living with others and being in a relationship were significant predictors of having higher global social support. Patients reported great support from family members. Many participants reported no changes in relationships with friends. Wound care managers took an important role and provided additional emotional support. Patients reported a range of discontinued activities. Despite the high overall level of social support, inter-individual differences should be acknowledged. The importance of family carers should be acknowledged to be able to reduce caregiver burden and to ensure high-qualitative wound care.
AB - Chronic wounds can severely limit patient's social life. This cross-sectional study investigated quantitatively social support of patients with chronic wounds, its association with health-related quality of life as well as qualitatively changes in social participation of these patients. Overall, 263 patients from seven countries participated. The most frequent wound class was leg ulcer (49.2%). Results revealed generally high levels of social support (mean global score: 5.5) as measured with the Multidimensional Scale of Perceived Social Support. However, individuals differed considerably (range 1.0-7.0). All dimensions of social support differed by patients' family and living situations (p < 0.001 to p = 0.040) and were positively correlated with generic health-related quality of life (r = 0.136-0.172). Having children, living with others and being in a relationship were significant predictors of having higher global social support. Patients reported great support from family members. Many participants reported no changes in relationships with friends. Wound care managers took an important role and provided additional emotional support. Patients reported a range of discontinued activities. Despite the high overall level of social support, inter-individual differences should be acknowledged. The importance of family carers should be acknowledged to be able to reduce caregiver burden and to ensure high-qualitative wound care.
KW - Child
KW - Humans
KW - Quality of Life/psychology
KW - Social Participation
KW - Cross-Sectional Studies
KW - Family/psychology
KW - Social Support
U2 - 10.1111/iwj.14309
DO - 10.1111/iwj.14309
M3 - SCORING: Journal article
C2 - 37475498
VL - 20
SP - 4138
EP - 4150
JO - INT WOUND J
JF - INT WOUND J
SN - 1742-4801
IS - 10
ER -