Freedom from disease in psoriasis: a Delphi consensus definition by patients, nurses and physicians

Standard

Freedom from disease in psoriasis: a Delphi consensus definition by patients, nurses and physicians. / van Ee, I; Deprez, E; Egeberg, A; Augustin, M; Conrad, C; Corazza, V; Donati, L; Lambert, J; Lăpădatu, R; Meyer, A; Paul, C; Penzer-Hick, R; Stephen, K; van der Zon, J; Bewley, A.

in: J EUR ACAD DERMATOL, Jahrgang 36, Nr. 3, 03.2022, S. 403-412.

Publikationen: SCORING: Beitrag in Fachzeitschrift/ZeitungSCORING: ZeitschriftenaufsatzForschungBegutachtung

Harvard

van Ee, I, Deprez, E, Egeberg, A, Augustin, M, Conrad, C, Corazza, V, Donati, L, Lambert, J, Lăpădatu, R, Meyer, A, Paul, C, Penzer-Hick, R, Stephen, K, van der Zon, J & Bewley, A 2022, 'Freedom from disease in psoriasis: a Delphi consensus definition by patients, nurses and physicians', J EUR ACAD DERMATOL, Jg. 36, Nr. 3, S. 403-412. https://doi.org/10.1111/jdv.17829

APA

van Ee, I., Deprez, E., Egeberg, A., Augustin, M., Conrad, C., Corazza, V., Donati, L., Lambert, J., Lăpădatu, R., Meyer, A., Paul, C., Penzer-Hick, R., Stephen, K., van der Zon, J., & Bewley, A. (2022). Freedom from disease in psoriasis: a Delphi consensus definition by patients, nurses and physicians. J EUR ACAD DERMATOL, 36(3), 403-412. https://doi.org/10.1111/jdv.17829

Vancouver

Bibtex

@article{638638e00b054653b48431124bc2dc01,
title = "Freedom from disease in psoriasis: a Delphi consensus definition by patients, nurses and physicians",
abstract = "BACKGROUND: Physician-reported clinical outcome and quality of life (QoL) measures are currently used to assess outcomes and direct treatment of plaque psoriasis. However, people with psoriasis may have different criteria for judging treatment success.OBJECTIVES: To build a unified consensus on the definition of 'freedom from disease' from a European stakeholder group, including people with psoriasis, dermatologists and nurses.METHODS: The modified Delphi consensus methodology was used to define 'freedom from disease', with a consensus group consisting of people with psoriasis, nurses and dermatologists. This methodology involved people with psoriasis during the entire process and consisted of a 15-member Facilitating Consensus Panel to drive the programme content and a larger Voting Consensus Panel to vote on defining 'freedom from disease'. The Facilitating Panel agreed on disease domains, and aspects of each domain were put forward to the Voting Consensus Panel to establish relative importance. Following two voting rounds, a meeting was held to agree on a final consensus statement.RESULTS: The Facilitating Panel consisted of six patient advocacy group representatives, three specialist nurses and six dermatologists. Voting rounds 1 and 2 were completed by 166 and 130 respondents from the Voting Consensus Panel, respectively. The outputs from both rounds of voting were similar, focusing on normality of living, symptom control, and a relationship of mutual respect and trust between the individual with psoriasis and their healthcare professional. The consensus statement emphasizes that 'freedom from disease' is multifaceted and includes the following domains 'management of clinical symptoms', 'psychosocial elements', 'QoL and well-being', 'treatment' and 'healthcare team support'. Freedom from disease' means all aspects are addressed.CONCLUSIONS: Freedom from disease in psoriasis is a multicomponent concept including five main domains. This diverse and multifaceted patient perspective will help us to improve understanding of the outcomes of treatment interventions in people with psoriasis.",
author = "{van Ee}, I and E Deprez and A Egeberg and M Augustin and C Conrad and V Corazza and L Donati and J Lambert and R L{\u a}p{\u a}datu and A Meyer and C Paul and R Penzer-Hick and K Stephen and {van der Zon}, J and A Bewley",
note = "This article is protected by copyright. All rights reserved.",
year = "2022",
month = mar,
doi = "10.1111/jdv.17829",
language = "English",
volume = "36",
pages = "403--412",
journal = "J EUR ACAD DERMATOL",
issn = "0926-9959",
publisher = "Wiley-Blackwell",
number = "3",

}

RIS

TY - JOUR

T1 - Freedom from disease in psoriasis: a Delphi consensus definition by patients, nurses and physicians

AU - van Ee, I

AU - Deprez, E

AU - Egeberg, A

AU - Augustin, M

AU - Conrad, C

AU - Corazza, V

AU - Donati, L

AU - Lambert, J

AU - Lăpădatu, R

AU - Meyer, A

AU - Paul, C

AU - Penzer-Hick, R

AU - Stephen, K

AU - van der Zon, J

AU - Bewley, A

N1 - This article is protected by copyright. All rights reserved.

PY - 2022/3

Y1 - 2022/3

N2 - BACKGROUND: Physician-reported clinical outcome and quality of life (QoL) measures are currently used to assess outcomes and direct treatment of plaque psoriasis. However, people with psoriasis may have different criteria for judging treatment success.OBJECTIVES: To build a unified consensus on the definition of 'freedom from disease' from a European stakeholder group, including people with psoriasis, dermatologists and nurses.METHODS: The modified Delphi consensus methodology was used to define 'freedom from disease', with a consensus group consisting of people with psoriasis, nurses and dermatologists. This methodology involved people with psoriasis during the entire process and consisted of a 15-member Facilitating Consensus Panel to drive the programme content and a larger Voting Consensus Panel to vote on defining 'freedom from disease'. The Facilitating Panel agreed on disease domains, and aspects of each domain were put forward to the Voting Consensus Panel to establish relative importance. Following two voting rounds, a meeting was held to agree on a final consensus statement.RESULTS: The Facilitating Panel consisted of six patient advocacy group representatives, three specialist nurses and six dermatologists. Voting rounds 1 and 2 were completed by 166 and 130 respondents from the Voting Consensus Panel, respectively. The outputs from both rounds of voting were similar, focusing on normality of living, symptom control, and a relationship of mutual respect and trust between the individual with psoriasis and their healthcare professional. The consensus statement emphasizes that 'freedom from disease' is multifaceted and includes the following domains 'management of clinical symptoms', 'psychosocial elements', 'QoL and well-being', 'treatment' and 'healthcare team support'. Freedom from disease' means all aspects are addressed.CONCLUSIONS: Freedom from disease in psoriasis is a multicomponent concept including five main domains. This diverse and multifaceted patient perspective will help us to improve understanding of the outcomes of treatment interventions in people with psoriasis.

AB - BACKGROUND: Physician-reported clinical outcome and quality of life (QoL) measures are currently used to assess outcomes and direct treatment of plaque psoriasis. However, people with psoriasis may have different criteria for judging treatment success.OBJECTIVES: To build a unified consensus on the definition of 'freedom from disease' from a European stakeholder group, including people with psoriasis, dermatologists and nurses.METHODS: The modified Delphi consensus methodology was used to define 'freedom from disease', with a consensus group consisting of people with psoriasis, nurses and dermatologists. This methodology involved people with psoriasis during the entire process and consisted of a 15-member Facilitating Consensus Panel to drive the programme content and a larger Voting Consensus Panel to vote on defining 'freedom from disease'. The Facilitating Panel agreed on disease domains, and aspects of each domain were put forward to the Voting Consensus Panel to establish relative importance. Following two voting rounds, a meeting was held to agree on a final consensus statement.RESULTS: The Facilitating Panel consisted of six patient advocacy group representatives, three specialist nurses and six dermatologists. Voting rounds 1 and 2 were completed by 166 and 130 respondents from the Voting Consensus Panel, respectively. The outputs from both rounds of voting were similar, focusing on normality of living, symptom control, and a relationship of mutual respect and trust between the individual with psoriasis and their healthcare professional. The consensus statement emphasizes that 'freedom from disease' is multifaceted and includes the following domains 'management of clinical symptoms', 'psychosocial elements', 'QoL and well-being', 'treatment' and 'healthcare team support'. Freedom from disease' means all aspects are addressed.CONCLUSIONS: Freedom from disease in psoriasis is a multicomponent concept including five main domains. This diverse and multifaceted patient perspective will help us to improve understanding of the outcomes of treatment interventions in people with psoriasis.

U2 - 10.1111/jdv.17829

DO - 10.1111/jdv.17829

M3 - SCORING: Journal article

C2 - 34816508

VL - 36

SP - 403

EP - 412

JO - J EUR ACAD DERMATOL

JF - J EUR ACAD DERMATOL

SN - 0926-9959

IS - 3

ER -