Documenting Patient Data in Psoriasis Clinical Practice-Patient Focus Groups Supporting Psoriasis Experts' Decision-making

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Documenting Patient Data in Psoriasis Clinical Practice-Patient Focus Groups Supporting Psoriasis Experts' Decision-making. / Otten, Marina Ursula; Augustin, Matthias.

in: PATIENT PREFER ADHER, Jahrgang 15, Nr. 15, 07.03.2021, S. 549-557.

Publikationen: SCORING: Beitrag in Fachzeitschrift/ZeitungSCORING: ZeitschriftenaufsatzForschungBegutachtung

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@article{28dcae1933ce4c9bb03fc38421755c38,
title = "Documenting Patient Data in Psoriasis Clinical Practice-Patient Focus Groups Supporting Psoriasis Experts' Decision-making",
abstract = "BACKGROUND AND OBJECTIVES: This article presents patients' attitudes about documenting patient data and outcome measures in psoriasis clinical practice to support a Delphi approach of psoriasis experts to develop a standard data set.PATIENTS AND METHODS: We conducted three focus groups with 14 patients in a German outpatient unit for psoriasis. The focus was to explore reasons for and against the documentation of single variables concerning personal, anamnesis, clinical, patient-reported outcomes, and other data.RESULTS: The patients mainly discussed if a variable has an impact on the disease or treatment decision, or if there might be a practical value from experiences with treatments when documented. In addition, in their point of view, patient-reported outcome data are important to document as it enables physicians to learn about a patient's subjective burden of disease. Patient education and the involvement of other physicians in the treatment process also emerged as relevant aspects.CONCLUSION: The results help to understand patients' preferences on documenting patient data and their idea of an exhaustive doctor-patient consultation to improve doctor-patient communication, disease monitoring, and quality of care.",
author = "Otten, {Marina Ursula} and Matthias Augustin",
year = "2021",
month = mar,
day = "7",
doi = "10.2147/PPA.S297569",
language = "English",
volume = "15",
pages = "549--557",
journal = "PATIENT PREFER ADHER",
issn = "1177-889X",
publisher = "DOVE MEDICAL PRESS LTD",
number = "15",

}

RIS

TY - JOUR

T1 - Documenting Patient Data in Psoriasis Clinical Practice-Patient Focus Groups Supporting Psoriasis Experts' Decision-making

AU - Otten, Marina Ursula

AU - Augustin, Matthias

PY - 2021/3/7

Y1 - 2021/3/7

N2 - BACKGROUND AND OBJECTIVES: This article presents patients' attitudes about documenting patient data and outcome measures in psoriasis clinical practice to support a Delphi approach of psoriasis experts to develop a standard data set.PATIENTS AND METHODS: We conducted three focus groups with 14 patients in a German outpatient unit for psoriasis. The focus was to explore reasons for and against the documentation of single variables concerning personal, anamnesis, clinical, patient-reported outcomes, and other data.RESULTS: The patients mainly discussed if a variable has an impact on the disease or treatment decision, or if there might be a practical value from experiences with treatments when documented. In addition, in their point of view, patient-reported outcome data are important to document as it enables physicians to learn about a patient's subjective burden of disease. Patient education and the involvement of other physicians in the treatment process also emerged as relevant aspects.CONCLUSION: The results help to understand patients' preferences on documenting patient data and their idea of an exhaustive doctor-patient consultation to improve doctor-patient communication, disease monitoring, and quality of care.

AB - BACKGROUND AND OBJECTIVES: This article presents patients' attitudes about documenting patient data and outcome measures in psoriasis clinical practice to support a Delphi approach of psoriasis experts to develop a standard data set.PATIENTS AND METHODS: We conducted three focus groups with 14 patients in a German outpatient unit for psoriasis. The focus was to explore reasons for and against the documentation of single variables concerning personal, anamnesis, clinical, patient-reported outcomes, and other data.RESULTS: The patients mainly discussed if a variable has an impact on the disease or treatment decision, or if there might be a practical value from experiences with treatments when documented. In addition, in their point of view, patient-reported outcome data are important to document as it enables physicians to learn about a patient's subjective burden of disease. Patient education and the involvement of other physicians in the treatment process also emerged as relevant aspects.CONCLUSION: The results help to understand patients' preferences on documenting patient data and their idea of an exhaustive doctor-patient consultation to improve doctor-patient communication, disease monitoring, and quality of care.

U2 - 10.2147/PPA.S297569

DO - 10.2147/PPA.S297569

M3 - SCORING: Journal article

VL - 15

SP - 549

EP - 557

JO - PATIENT PREFER ADHER

JF - PATIENT PREFER ADHER

SN - 1177-889X

IS - 15

ER -