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Disease-specific quality-of-life measurement tools for haemophilia patients

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Disease-specific quality-of-life measurement tools for haemophilia patients. / Remor, E; Young, N L; Von Mackensen, S; Lopatina, E G.

in: HAEMOPHILIA, Jahrgang 10 Suppl 4, 10.2004, S. 30-4.

Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Review › Forschung

Harvard

Remor, E, Young, NL, Von Mackensen, S & Lopatina, EG 2004, 'Disease-specific quality-of-life measurement tools for haemophilia patients', HAEMOPHILIA, Jg. 10 Suppl 4, S. 30-4. https://doi.org/10.1111/j.1365-2516.2004.01004.x

APA

Remor, E., Young, N. L., Von Mackensen, S., & Lopatina, E. G. (2004). Disease-specific quality-of-life measurement tools for haemophilia patients. HAEMOPHILIA, 10 Suppl 4, 30-4. https://doi.org/10.1111/j.1365-2516.2004.01004.x

Vancouver

Remor E, Young NL, Von Mackensen S, Lopatina EG. Disease-specific quality-of-life measurement tools for haemophilia patients. HAEMOPHILIA. 2004 Okt;10 Suppl 4:30-4. https://doi.org/10.1111/j.1365-2516.2004.01004.x

Bibtex

@article{6733e4d6451c4a8bb69de77db5f4ae27,
title = "Disease-specific quality-of-life measurement tools for haemophilia patients",
abstract = "The purpose of this paper is to summarize the state of the art in measuring quality of life in haemophila populations. The paper reviews the measures recently included in haemophila trials in the published literature. It also summarizes the development of four new disease-specific measures of health-related quality of life. Two of these were developed for children (the Haemo-QoL and the CHO-KLAT), and two for adults (the Hemofilia-QoL and the Hemolatin-QoL). These new measures show promise for use in clinical trials. Further research is in progress to complete the psychometric testing and cross-cultural validation.",
keywords = "Adolescent, Adult, Child, Disability Evaluation, Hemophilia A, Humans, Outcome Assessment (Health Care), Quality of Life, Reproducibility of Results, Surveys and Questionnaires, Journal Article, Research Support, Non-U.S. Gov't, Review",
author = "E Remor and Young, {N L} and {Von Mackensen}, S and Lopatina, {E G}",
year = "2004",
month = oct,
doi = "10.1111/j.1365-2516.2004.01004.x",
language = "English",
volume = "10 Suppl 4",
pages = "30--4",
journal = "HAEMOPHILIA",
issn = "1351-8216",
publisher = "Wiley-Blackwell",

}

RIS

TY - JOUR

T1 - Disease-specific quality-of-life measurement tools for haemophilia patients

AU - Remor, E

AU - Young, N L

AU - Von Mackensen, S

AU - Lopatina, E G

PY - 2004/10

Y1 - 2004/10

N2 - The purpose of this paper is to summarize the state of the art in measuring quality of life in haemophila populations. The paper reviews the measures recently included in haemophila trials in the published literature. It also summarizes the development of four new disease-specific measures of health-related quality of life. Two of these were developed for children (the Haemo-QoL and the CHO-KLAT), and two for adults (the Hemofilia-QoL and the Hemolatin-QoL). These new measures show promise for use in clinical trials. Further research is in progress to complete the psychometric testing and cross-cultural validation.

AB - The purpose of this paper is to summarize the state of the art in measuring quality of life in haemophila populations. The paper reviews the measures recently included in haemophila trials in the published literature. It also summarizes the development of four new disease-specific measures of health-related quality of life. Two of these were developed for children (the Haemo-QoL and the CHO-KLAT), and two for adults (the Hemofilia-QoL and the Hemolatin-QoL). These new measures show promise for use in clinical trials. Further research is in progress to complete the psychometric testing and cross-cultural validation.

KW - Adolescent

KW - Adult

KW - Child

KW - Disability Evaluation

KW - Hemophilia A

KW - Humans

KW - Outcome Assessment (Health Care)

KW - Quality of Life

KW - Reproducibility of Results

KW - Surveys and Questionnaires

KW - Journal Article

KW - Research Support, Non-U.S. Gov't

KW - Review

U2 - 10.1111/j.1365-2516.2004.01004.x

DO - 10.1111/j.1365-2516.2004.01004.x

M3 - SCORING: Review article

C2 - 15479369

VL - 10 Suppl 4

SP - 30

EP - 34

JO - HAEMOPHILIA

JF - HAEMOPHILIA

SN - 1351-8216

ER -