Characteristics of shared decision making in Romania from the patient perspective: A cross-sectional multicentric study

TY - JOUR

T1 - Characteristics of shared decision making in Romania from the patient perspective: A cross-sectional multicentric study

AU - Baicus, Cristian

AU - Balanescu, Paul

AU - Zeh, Stefan

AU - Oprisan, Emilia

AU - Lapadatu, Rozalina

AU - Gurghean, Adriana

AU - Padureanu, Vlad

AU - Rezus, Ciprian

AU - Mitu, Florin

AU - Jurcut, Ruxandra

AU - Balanescu, Andra Rodica

AU - Daha, Ioana

AU - Balanescu, Eugenia

AU - Bojinca, Mihai

AU - Pinte, Larisa

AU - Constantin, Alexandru Marian

AU - Dima, Nicoleta

AU - Floria, Mariana

AU - Leon-Constantin, Maria Magdalena

AU - Roca, Mihai

AU - Mitu, Magda

AU - Chiriac, Silvia

AU - Badescu, Codruta Minerva

AU - Ionescu, Simona Daniela

AU - Mitrea, Elena

AU - Rosu, Gabriel

AU - Rezus, Elena

AU - Ionescu, Georgeta Daniela

AU - Visinescu, Ana Maria

AU - Mihailescu, Gabriela

AU - Badea, Camelia Georgeta

N1 - © 2019 John Wiley & Sons, Ltd.

PY - 2019/12

Y1 - 2019/12

N2 - BACKGROUND: Shared decision making (SDM) is very important from patients' perspective. This process has not yet been evaluated in Romania. The study aims to evaluate SDM from the patients' perspective and to evaluate patients' characteristics that associate with SDM.MATERIAL AND METHODS: A cross-sectional multicentric study comprising eight recruitment centres was performed. Inpatients and outpatients who referred to Hospital Units treating autoimmune diseases or atrial fibrillation were included. Another sample consisted of members of the Autoimmune Disease Patient Society, who completed an online anonymous questionnaire. All participants completed the Romanian translated version of the 9-item Shared Decision Making Questionnaire (SDM-Q-9), as these samples were used for the validation of this questionnaire, too. Patients had to refer to the visit in which the decision concerning the antithrombotic treatment was taken (atrial fibrillation patients), or the immunosuppressive treatment was last time changed (autoimmune disease patients). Ordinal regression having the total SDM score as dependent variable was used.RESULTS: A total of 665 questionnaires were filled in within the hospital setting (n = 324; 48.7%) and online (n = 341; 51.3%). The median score for SDM was 34 of 45, but it differed between hospital completion -39/45 and online completion (anonymous) -20/45 (P < .001). Patients with higher education were influenced most by the setting, giving the best marks in hospital and low marks online, while those with lower education gave lower marks in both settings. In ordinal regression with SDM score as dependent variable, hospital completion of the questionnaire (OR = 9.5, 95% confidence interval, 5.69-16), collagen disease diagnosis (OR = 2.4, 95% confidence interval, 1.39-4.14), and immunosuppressive treatment (OR = 2.16, 95% confidence interval, 1.43-3.26) were independent predictors.CONCLUSION: In our study, full anonymity was associated with significantly lower scores for the SDM process. The patients with higher education were most influenced by this condition, while those with the lowest education were the most critical.

AB - BACKGROUND: Shared decision making (SDM) is very important from patients' perspective. This process has not yet been evaluated in Romania. The study aims to evaluate SDM from the patients' perspective and to evaluate patients' characteristics that associate with SDM.MATERIAL AND METHODS: A cross-sectional multicentric study comprising eight recruitment centres was performed. Inpatients and outpatients who referred to Hospital Units treating autoimmune diseases or atrial fibrillation were included. Another sample consisted of members of the Autoimmune Disease Patient Society, who completed an online anonymous questionnaire. All participants completed the Romanian translated version of the 9-item Shared Decision Making Questionnaire (SDM-Q-9), as these samples were used for the validation of this questionnaire, too. Patients had to refer to the visit in which the decision concerning the antithrombotic treatment was taken (atrial fibrillation patients), or the immunosuppressive treatment was last time changed (autoimmune disease patients). Ordinal regression having the total SDM score as dependent variable was used.RESULTS: A total of 665 questionnaires were filled in within the hospital setting (n = 324; 48.7%) and online (n = 341; 51.3%). The median score for SDM was 34 of 45, but it differed between hospital completion -39/45 and online completion (anonymous) -20/45 (P < .001). Patients with higher education were influenced most by the setting, giving the best marks in hospital and low marks online, while those with lower education gave lower marks in both settings. In ordinal regression with SDM score as dependent variable, hospital completion of the questionnaire (OR = 9.5, 95% confidence interval, 5.69-16), collagen disease diagnosis (OR = 2.4, 95% confidence interval, 1.39-4.14), and immunosuppressive treatment (OR = 2.16, 95% confidence interval, 1.43-3.26) were independent predictors.CONCLUSION: In our study, full anonymity was associated with significantly lower scores for the SDM process. The patients with higher education were most influenced by this condition, while those with the lowest education were the most critical.

U2 - 10.1111/jep.13257

DO - 10.1111/jep.13257

M3 - SCORING: Journal article

C2 - 31407420

VL - 25

SP - 1152

EP - 1159

JO - J EVAL CLIN PRACT

JF - J EVAL CLIN PRACT

SN - 1356-1294

IS - 6

ER -