Cancer patients and advance directives: a survey of patients in a hematology and oncology outpatient clinic
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Cancer patients and advance directives: a survey of patients in a hematology and oncology outpatient clinic. / Hubert, Elisabeth; Schulte, Nadine; Belle, Sebastian; Gerhardt, Axel; Merx, Kirsten; Hofmann, Wolf-Karsten; Stein, Alexander; Burkholder, Iris; Hofheinz, Ralf-Dieter; Kripp, Melanie.
in: ONKOLOGIE, Jahrgang 36, Nr. 7-8, 01.01.2013, S. 398-402.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung
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TY - JOUR
T1 - Cancer patients and advance directives: a survey of patients in a hematology and oncology outpatient clinic
AU - Hubert, Elisabeth
AU - Schulte, Nadine
AU - Belle, Sebastian
AU - Gerhardt, Axel
AU - Merx, Kirsten
AU - Hofmann, Wolf-Karsten
AU - Stein, Alexander
AU - Burkholder, Iris
AU - Hofheinz, Ralf-Dieter
AU - Kripp, Melanie
N1 - © 2013 S. Karger GmbH, Freiburg.
PY - 2013/1/1
Y1 - 2013/1/1
N2 - BACKGROUND: In 2009, Germany enacted a new law supporting advance directives that led to heated discussions in the media and the public. 3 years after the law passed, we surveyed patients with malignant diseases with regards to their views on advance directives.PATIENTS AND METHODS: Between September 2011 and July 2012 an anonymous survey on advance directives was conducted among 617 patients at the hematology and oncology outpatient department of the University Hospital Mannheim, using a standardized questionnaire developed for this investigation.RESULTS: Of the 503 patients who returned the questionnaire, 31% (n = 157) indicated having an advance directive. Of these 157, 54% (n = 85) completed the advance directive after 2009. 56% (282 out of 503) desired more information on advance directives. Of these, 71% (201 out of 282) wanted their general physician and 45% (128 out of 282) their specialist, to provide more information about this issue. Of the 339 patients without an advance directive, 47% (n = 158) stated that they had 'not worried about that yet'.CONCLUSION: Although the percentage of patients with advance directives has increased since the legislative amendment, more information is still required by patients. It is recommended that physicians should discuss advance directives more frequently with their patients.
AB - BACKGROUND: In 2009, Germany enacted a new law supporting advance directives that led to heated discussions in the media and the public. 3 years after the law passed, we surveyed patients with malignant diseases with regards to their views on advance directives.PATIENTS AND METHODS: Between September 2011 and July 2012 an anonymous survey on advance directives was conducted among 617 patients at the hematology and oncology outpatient department of the University Hospital Mannheim, using a standardized questionnaire developed for this investigation.RESULTS: Of the 503 patients who returned the questionnaire, 31% (n = 157) indicated having an advance directive. Of these 157, 54% (n = 85) completed the advance directive after 2009. 56% (282 out of 503) desired more information on advance directives. Of these, 71% (201 out of 282) wanted their general physician and 45% (128 out of 282) their specialist, to provide more information about this issue. Of the 339 patients without an advance directive, 47% (n = 158) stated that they had 'not worried about that yet'.CONCLUSION: Although the percentage of patients with advance directives has increased since the legislative amendment, more information is still required by patients. It is recommended that physicians should discuss advance directives more frequently with their patients.
KW - Adolescent
KW - Adult
KW - Advance Directives
KW - Age Distribution
KW - Aged
KW - Aged, 80 and over
KW - Ambulatory Care Facilities
KW - Educational Status
KW - Female
KW - Germany
KW - Health Literacy
KW - Hematology
KW - Humans
KW - Male
KW - Medical Oncology
KW - Middle Aged
KW - Neoplasms
KW - Patient Participation
KW - Prevalence
KW - Questionnaires
KW - Sex Distribution
KW - Young Adult
U2 - 10.1159/000353604
DO - 10.1159/000353604
M3 - SCORING: Journal article
C2 - 23921757
VL - 36
SP - 398
EP - 402
JO - ONKOLOGIE
JF - ONKOLOGIE
SN - 0378-584X
IS - 7-8
ER -