Adherence in multiple sclerosis (ADAMS): classification, relevance, and research needs. A meeting report
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Adherence in multiple sclerosis (ADAMS): classification, relevance, and research needs. A meeting report. / Heesen, Christoph; Bruce, Jared; Feys, Peter; Sastre-Garriga, Jaume; Solari, Alessandra; Eliasson, Lina; Matthews, Vicki; Hausmann, Bettina; Ross, Amy Perrin; Asano, Miho; Imonen-Charalambous, Kaisa; Köpke, Sascha; Clyne, Wendy; Bissell, Paul.
in: MULT SCLER J, Jahrgang 20, Nr. 13, 01.11.2014, S. 1795-8.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung
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TY - JOUR
T1 - Adherence in multiple sclerosis (ADAMS): classification, relevance, and research needs. A meeting report
AU - Heesen, Christoph
AU - Bruce, Jared
AU - Feys, Peter
AU - Sastre-Garriga, Jaume
AU - Solari, Alessandra
AU - Eliasson, Lina
AU - Matthews, Vicki
AU - Hausmann, Bettina
AU - Ross, Amy Perrin
AU - Asano, Miho
AU - Imonen-Charalambous, Kaisa
AU - Köpke, Sascha
AU - Clyne, Wendy
AU - Bissell, Paul
N1 - © The Author(s), 2014.
PY - 2014/11/1
Y1 - 2014/11/1
N2 - BACKGROUND: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied.METHODS: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session.RESULTS: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions.CONCLUSIONS: A focus on patient preferences as well as a non-judgmental discussion on adherence issues with patients should be at the core of adherence work.
AB - BACKGROUND: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied.METHODS: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session.RESULTS: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions.CONCLUSIONS: A focus on patient preferences as well as a non-judgmental discussion on adherence issues with patients should be at the core of adherence work.
U2 - 10.1177/1352458514531348
DO - 10.1177/1352458514531348
M3 - SCORING: Journal article
C2 - 24756569
VL - 20
SP - 1795
EP - 1798
JO - MULT SCLER J
JF - MULT SCLER J
SN - 1352-4585
IS - 13
ER -