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Health-related quality of life compared with cardiopulmonary exercise testing at the midterm follow-up visit after tetralogy of Fallot repair: a study of the German competence network for congenital heart defects

Standard

Health-related quality of life compared with cardiopulmonary exercise testing at the midterm follow-up visit after tetralogy of Fallot repair: a study of the German competence network for congenital heart defects. / Mueller, Goetz C; Sarikouch, Samir; Beerbaum, Philipp; Hager, Alfred; Dubowy, Karl-Otto; Peters, Brigitte; Mir, Thomas S.

in: PEDIATR CARDIOL, Jahrgang 34, Nr. 5, 06.2013, S. 1081-7.

Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung

Harvard

Mueller, GC, Sarikouch, S, Beerbaum, P, Hager, A, Dubowy, K-O, Peters, B & Mir, TS 2013, 'Health-related quality of life compared with cardiopulmonary exercise testing at the midterm follow-up visit after tetralogy of Fallot repair: a study of the German competence network for congenital heart defects', PEDIATR CARDIOL, Jg. 34, Nr. 5, S. 1081-7. https://doi.org/10.1007/s00246-012-0603-2

APA

Mueller, G. C., Sarikouch, S., Beerbaum, P., Hager, A., Dubowy, K-O., Peters, B., & Mir, T. S. (2013). Health-related quality of life compared with cardiopulmonary exercise testing at the midterm follow-up visit after tetralogy of Fallot repair: a study of the German competence network for congenital heart defects. PEDIATR CARDIOL, 34(5), 1081-7. https://doi.org/10.1007/s00246-012-0603-2

Vancouver

Mueller GC, Sarikouch S, Beerbaum P, Hager A, Dubowy K-O, Peters B et al. Health-related quality of life compared with cardiopulmonary exercise testing at the midterm follow-up visit after tetralogy of Fallot repair: a study of the German competence network for congenital heart defects. PEDIATR CARDIOL. 2013 Jun;34(5):1081-7. https://doi.org/10.1007/s00246-012-0603-2

Bibtex

@article{3e55fff3b04b4e45940dac86c8051812,
title = "Health-related quality of life compared with cardiopulmonary exercise testing at the midterm follow-up visit after tetralogy of Fallot repair: a study of the German competence network for congenital heart defects",
abstract = "This nationwide study aimed to evaluate health-related quality of life (QoL) experienced by children after tetralogy of Fallot repair and to compare self-reported physical ability with objective exercise performance. This prospective nonrandomized, government-funded multicenter study enrolled 168 patients (70 girls; ages 8-16 years) after tetralogy of Fallot repair at eight German heart centers. Health-related QoL was analyzed by the self-reported KINDL-R quality-of-life questionnaire. The patients' actual exercise capacity was evaluated by a cardiopulmonary exercise test. Health-related QoL and cardiopulmonary exercise capacity were compared with those of an age-matched German standard population. Correlation of health-related QoL with self-estimated physical rating and cardiopulmonary exercise capacity were analyzed. Health-related QoL in children and adolescents after tetralogy of Fallot repair is without limitation. Compared with the standard population, all the items evaluated by the KINDL-R questionnaire showed better or similar values, whereas objective exercise capacity compared with that of the standard population was impaired. Peak oxygen uptake correlated significantly with the physical well-being (p = 0.002) and the total score (p = 0.01) of the KINDL-R questionnaire. Health-related QoL experienced by children and adolescents after tetralogy of Fallot repair is comparable with that of the healthy standard population. However, closer inspection shows that self-estimated physical functioning is significantly overestimated compared with actual exercise capacity. Quality-of-life instruments and exercise tests, therefore, should be used in a complementary manner with children to avoid eventually fatal misinterpretation of patient-estimated physical ability.",
keywords = "Adolescent, Child, Exercise Test, Female, Follow-Up Studies, Germany, Humans, Male, Prospective Studies, Quality of Life, Surveys and Questionnaires, Tetralogy of Fallot/physiopathology",
author = "Mueller, {Goetz C} and Samir Sarikouch and Philipp Beerbaum and Alfred Hager and Karl-Otto Dubowy and Brigitte Peters and Mir, {Thomas S}",
year = "2013",
month = jun,
doi = "10.1007/s00246-012-0603-2",
language = "English",
volume = "34",
pages = "1081--7",
journal = "PEDIATR CARDIOL",
issn = "0172-0643",
publisher = "Springer New York",
number = "5",

}

RIS

TY - JOUR

T1 - Health-related quality of life compared with cardiopulmonary exercise testing at the midterm follow-up visit after tetralogy of Fallot repair: a study of the German competence network for congenital heart defects

AU - Mueller, Goetz C

AU - Sarikouch, Samir

AU - Beerbaum, Philipp

AU - Hager, Alfred

AU - Dubowy, Karl-Otto

AU - Peters, Brigitte

AU - Mir, Thomas S

PY - 2013/6

Y1 - 2013/6

N2 - This nationwide study aimed to evaluate health-related quality of life (QoL) experienced by children after tetralogy of Fallot repair and to compare self-reported physical ability with objective exercise performance. This prospective nonrandomized, government-funded multicenter study enrolled 168 patients (70 girls; ages 8-16 years) after tetralogy of Fallot repair at eight German heart centers. Health-related QoL was analyzed by the self-reported KINDL-R quality-of-life questionnaire. The patients' actual exercise capacity was evaluated by a cardiopulmonary exercise test. Health-related QoL and cardiopulmonary exercise capacity were compared with those of an age-matched German standard population. Correlation of health-related QoL with self-estimated physical rating and cardiopulmonary exercise capacity were analyzed. Health-related QoL in children and adolescents after tetralogy of Fallot repair is without limitation. Compared with the standard population, all the items evaluated by the KINDL-R questionnaire showed better or similar values, whereas objective exercise capacity compared with that of the standard population was impaired. Peak oxygen uptake correlated significantly with the physical well-being (p = 0.002) and the total score (p = 0.01) of the KINDL-R questionnaire. Health-related QoL experienced by children and adolescents after tetralogy of Fallot repair is comparable with that of the healthy standard population. However, closer inspection shows that self-estimated physical functioning is significantly overestimated compared with actual exercise capacity. Quality-of-life instruments and exercise tests, therefore, should be used in a complementary manner with children to avoid eventually fatal misinterpretation of patient-estimated physical ability.

AB - This nationwide study aimed to evaluate health-related quality of life (QoL) experienced by children after tetralogy of Fallot repair and to compare self-reported physical ability with objective exercise performance. This prospective nonrandomized, government-funded multicenter study enrolled 168 patients (70 girls; ages 8-16 years) after tetralogy of Fallot repair at eight German heart centers. Health-related QoL was analyzed by the self-reported KINDL-R quality-of-life questionnaire. The patients' actual exercise capacity was evaluated by a cardiopulmonary exercise test. Health-related QoL and cardiopulmonary exercise capacity were compared with those of an age-matched German standard population. Correlation of health-related QoL with self-estimated physical rating and cardiopulmonary exercise capacity were analyzed. Health-related QoL in children and adolescents after tetralogy of Fallot repair is without limitation. Compared with the standard population, all the items evaluated by the KINDL-R questionnaire showed better or similar values, whereas objective exercise capacity compared with that of the standard population was impaired. Peak oxygen uptake correlated significantly with the physical well-being (p = 0.002) and the total score (p = 0.01) of the KINDL-R questionnaire. Health-related QoL experienced by children and adolescents after tetralogy of Fallot repair is comparable with that of the healthy standard population. However, closer inspection shows that self-estimated physical functioning is significantly overestimated compared with actual exercise capacity. Quality-of-life instruments and exercise tests, therefore, should be used in a complementary manner with children to avoid eventually fatal misinterpretation of patient-estimated physical ability.

KW - Adolescent

KW - Child

KW - Exercise Test

KW - Female

KW - Follow-Up Studies

KW - Germany

KW - Humans

KW - Male

KW - Prospective Studies

KW - Quality of Life

KW - Surveys and Questionnaires

KW - Tetralogy of Fallot/physiopathology

U2 - 10.1007/s00246-012-0603-2

DO - 10.1007/s00246-012-0603-2

M3 - SCORING: Journal article

C2 - 23263026

VL - 34

SP - 1081

EP - 1087

JO - PEDIATR CARDIOL

JF - PEDIATR CARDIOL

SN - 0172-0643

IS - 5

ER -